Cystic fibrosis is a complex genetic disease, often invisible. Many people don’t know they are healthy carriers: in Italy, this is the case for 1 in 30 individuals. When both parents are carriers, there is a one-in-four chance that a child will be born with the disease.
From this reality, and from a request that came directly from our community, comes “1 in 30 and you don’t know it”, the awareness and education project of the Fondazione per la Ricerca sulla Fibrosi Cistica – ETS.
Since 2021, this initiative has helped people learn about the disease and the test that can reveal carrier status, especially for those considering starting a family.
A community that listens and responds — this is how change is born.